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A historic day for PKU

作者:罗华 郝燕捷   发布时间:2017-09-11 23:01:50   浏览次数:439

                                                                  A historic day for PKU

                                                               Hua Luo, Yanjie Hao     

 

     May 5th 2017 , the sixth day of world pulmonary hypertension(PH), was an historicday for Peking University(PKU) to start international cooperation with PHA.

  As  the forerunner in China, Peking University Young League on PVD prevention(PUYLPP) has been devoting itself to PAH professional education since 2012 and becomesthe PVD education center in PKU. On May 5th 2017,it initiated the first PKU project on PAH patient leadership training by the PHA appeal to establishing asupport group in PKU.The project was host by Prof. Yanjie Hao who is a key PUYLPP member and an excellent rheumatologist from Peking University FirstHospital (PUFH). Prof. Yanjie Hao and Prof. Zuoli Zhang had found the first PKUPAH Patients Club and done very well in patients management and following upduring past five year.

   Prof.Haohad been preparing this project carefully for a few weeks and finally made agreat success. In high spirits ,Prof. Wei Ma (a cardiologist from PUFH,ESCFellow) ,Dr Jiping Liao (a respiratory specialist from PUFH) and she gavepresentations on general knowledge of PAH, lung disease related PH andconnective tissue disease related PAH respectively. About twenty PAH patientrepresentatives and some of their family members attended this activity. Thistraining focused on how to manage their daily life, deal with some urgentsituations and keep contact with doctors from patients perspective. Prof. Hua Luo,thefounder of PUYLPP who spared no pains to fly to Peking from city thousands ofmiles away, introduced the PHA patient support and leadership training programin detail.He promised a genuine public welfare and lifelong nature of theproject. In the last an hour, all experts sponsored a free consultation for PAHpatients and encourage them defeating the disease corporately.

   Acouple of medical PhD students from PKU and Chinese Student Association on PVDPrevention (CSAPP) interested in patients care participated in the project asvolunteers. The known Chinese media, HEALTH TV was attracted to the scene andwill edit a global reporting  on thetraining via satellite television.

   Theproject will arouse more international attention to China and improve theChinese public understanding and care on PAH.We are Together! PKU and PHA willcreate a meaningful and educational experience for PH patients.



From  Michael Knaapen


Dr. Luo,

 

Thank you for your message, and for the incredible work you are doing to raise awareness about PH in Peking. I would love to learn more about the education program you have created. Have you shared it with other international organizations who may benefit from, or have feedback about, the experience?

 

I am including my friends and colleagues in the PHA communications team who may have more feedback on the World PH Day awareness-raising piece of this conversation.

 

Thank you again, and please keep in touch.

 

 

Michael Knaapen

Director, Patient and Caregiver Programs







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